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ABOUT US

The Childhood Glaucoma Research Network (CGRN) is an international network of physicians & scientists dedicated to changing the lives of children

WHO WE ARE

The Childhood Glaucoma Research Network is a global association of ophthalmologists, clinicians, and scientists who collaborate to advance the research, treatment, and care for those with pediatric glaucoma. We connect specialists from around the world to share their clinical experience and expertise in pediatric glaucoma with the goals of advancing our understanding of the disease, improving outcomes, increasing awareness, and improving educational outreach.

WHO WE ARE

The Childhood Glaucoma Research Network is a global association of ophthalmologists, clinicians, and scientists who collaborate to advance the research, treatment, and care for those with pediatric glaucoma. We connect specialists from around the world to share their clinical experience and expertise in pediatric glaucoma with the goals of advancing our understanding of the disease, improving outcomes, increasing awareness, and improving educational outreach.

WHO WE ARE

The Childhood Glaucoma Research Network is a global association of ophthalmologists, clinicians, and scientists who collaborate to advance the research, treatment, and care for those with pediatric glaucoma. We connect specialists from around the world to share their clinical experience and expertise in pediatric glaucoma with the goals of advancing our understanding of the disease, improving outcomes, increasing awareness, and improving educational outreach.

 

OUR HISTORY

Childhood glaucoma is an uncommon and chronic disorder that can cause permanent vision loss and blindness if left untreated. However, with an accurate and early diagnosis, along with effective treatment, children with pediatric glaucoma can achieve normal or near normal vision. Pediatric glaucoma has long been one of the most challenging eye conditions for children, parents and families. It can be difficult to diagnose and treat without specialized knowledge and experience. 

 

The Childhood Glaucoma Research Network (CGRN) was established in 2011 to facilitate collaboration between thought leaders from leading eye care centers around the world. The CGRN aims to utilize each member’s unique expertise and understanding of pediatric eye disease and glaucoma to promote progress in research and improve the care of childhood glaucoma.

 

Initial work in creating the CGRN was led by the voluntary efforts of a number of pediatric glaucoma specialists in the United States and United Kingdom. Dr. Alana Grajewski, glaucoma and pediatric glaucoma specialist from the University of Minnesota and Bascom Palmer Eye Institute at the University of Miami, organized the group and established financial support from the GL Foundation for Children with Glaucoma, the University of Minnesota Department of Ophthalmology and Visual Neurosciences, and the Minnesota Lions Vision Foundation. The Childhood Glaucoma Research Network is now supported and administered by faculty and staff at Bascom Palmer Eye Institute’s The Samuel & Ethel Balkan International Pediatric Glaucoma Center and the GL Foundation for Children with Glaucoma.

 

What began as a small organization of pediatric glaucoma specialists in two countries has now grown to over 200 specialists in the fields of pediatric glaucoma, genetics, neuro-ophthalmology, and other specialized fields in over 40 countries.

 

Prior to the creation of the CGRN, physicians worldwide were using different language to describe what they were experiencing with patients with pediatric glaucoma. Within 12 months, the CGRN successfully proposed the first International Consensus Classification of childhood glaucoma to serve as the foundation for future research. The classification is now recognized worldwide as the classification for childhood glaucoma, reaching consensus agreement at the Ninth World Glaucoma Association Consensus and has been adopted by the American Board of Ophthalmology.

 

In 2013, members of the CGRN united to contribute to the publication of the World Glaucoma Association’s Consensus Series – 9 on Childhood Glaucoma. In 2014, the Childhood Glaucoma Research Network became a member of the World Glaucoma Association. In 2018, members once again collaborated for the publication of the Surgical Management of Childhood Glaucoma.

 

As an uncommon disease, there is a significant research challenge with pediatric glaucoma because individual eye centers across the world do not have enough patients to accomplish critical studies. In 2016, the CGRN was able to complete the first ever worldwide survey of pediatric glaucoma to advance our understanding of all types of glaucoma called the International Study of Childhood Glaucoma (ISOCG). Following the completion of ISOCG, the CGRN continued on to join The Robison D. Harley, MD CGRN International Pediatric Glaucoma Registry. The Registry, hosted by Wills Eye Hospital and maintained by Invitae, allows clinicians to collaborate and conduct large-scale investigations.  

 

FOUNDING MEMBERS

FOUNDING MEMBERS

Allen D. Beck, MD

Emory Eye Center

Atlanta, Georgia, USA

Chair and Director, Emory Eye Center

William and Clara Redmond Professor of Ophthalmology Section of Glaucoma

James D. Brandt, MD

UC Davis Health

Sacramento, California, USA

Vice-Chair for International Programs & New Technology, Director of the Glaucoma Service, Professor of Ophthalmology & Vision Science

Sharon F. Freedman, MD

Duke Eye Center

Durham, North Carolina, USA

Glaucoma Specialist

Ophthalmologist

Pediatric Ophthalmologist

Alana L. Grajewski, MD

Bascom Palmer Eye Institute

Miami, Florida, USA

Director of The Samuel & Ethel Balkan International Pediatric Glaucoma Center

Professor of Clinical Ophthalmology

Sir Peng T. Khaw, PhD FRCS

Moorfields Eye Hospital

London, United Kingdom

 

Professor of Glaucoma and Ocular Healing at the UCL Institute of Ophthalmology, Consultant Ophthalmic Surgeon at Moorfields Eye Hospital

Maria Papadopoulos MB BS, FRACO

Moorfields Eye Hospital

London, United Kingdom

Consultant Ophthalmic Surgeon, Glaucoma and Pediatric Glaucoma Specialist

 

Miami, Florida, USA

Bascom Palmer Eye Institute's The Samuel & Ethel Balkan International Pediatric Glaucoma Center

CENTERS OF EXCELLENCE

Miami, Florida, USA

Sacramento, California, USA

Sacramento, California, USA

University of California, Davis

UC Davis Health

 
 
 

ABOUT US

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CONTACT US

The Childhood Glaucoma Research Network (CGRN) is an international network of physicians & scientists dedicated to changing the lives of children

+1-305-482-4812

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