WHO WE ARE
The Childhood Glaucoma Research Network is a global association of ophthalmologists, clinicians, and scientists who collaborate to advance the research, treatment, and care for those with pediatric glaucoma. We connect specialists from around the world to share their clinical experience and expertise in pediatric glaucoma with the goals of advancing our understanding of the disease, improving outcomes, increasing awareness, and improving educational outreach.
The mission of the Childhood Glaucoma Research Network is to serve as a catalyst to bring together ophthalmologists and specialists with a mutual interest in childhood glaucoma. We aim to leverage each member’s unique expertise and understanding of pediatric eye disease and glaucoma to promote progress in research leading to improved clinical outcomes for children with glaucoma.
We are committed to reducing preventable blindness in babies, children, and adolescents due to pediatric glaucoma. The Childhood Glaucoma Research Network promotes a culture of collaboration, research, and advocacy to support our mission to promote progress in research and improve outcomes for children with glaucoma.
Childhood glaucoma is an uncommon and chronic disorder that can cause permanent vision loss and blindness if left untreated. However, with an accurate and early diagnosis, along with effective treatment, children with pediatric glaucoma can achieve normal or near normal vision. Pediatric glaucoma has long been one of the most challenging eye conditions for children, parents and families. It can be difficult to diagnose and treat without specialized knowledge and experience.
The Childhood Glaucoma Research Network (CGRN) was established in 2011 to facilitate collaboration between thought leaders from leading eye care centers around the world. The CGRN aims to utilize each member’s unique expertise and understanding of pediatric eye disease and glaucoma to promote progress in research and improve the care of childhood glaucoma.
Initial work in creating the CGRN was led by the voluntary efforts of a number of pediatric glaucoma specialists in the United States and United Kingdom. Dr. Alana Grajewski, glaucoma and pediatric glaucoma specialist from the University of Minnesota and Bascom Palmer Eye Institute at the University of Miami, organized the group and established financial support from the GL Foundation for Children with Glaucoma, the University of Minnesota Department of Ophthalmology and Visual Neurosciences, and the Minnesota Lions Vision Foundation. The Childhood Glaucoma Research Network is now supported and administered by faculty and staff at Bascom Palmer Eye Institute’s The Samuel & Ethel Balkan International Pediatric Glaucoma Center and the GL Foundation for Children with Glaucoma.
What began as a small organization of pediatric glaucoma specialists in two countries has now grown to over 200 specialists in the fields of pediatric glaucoma, genetics, neuro-ophthalmology, and other specialized fields in over 40 countries.
Prior to the creation of the CGRN, physicians worldwide were using different language to describe what they were experiencing with patients with pediatric glaucoma. Within 12 months, the CGRN successfully proposed the first International Consensus Classification of childhood glaucoma to serve as the foundation for future research. The classification is now recognized worldwide as the classification for childhood glaucoma, reaching consensus agreement at the Ninth World Glaucoma Association Consensus and has been adopted by the American Board of Ophthalmology.
In 2013, members of the CGRN united to contribute to the publication of the World Glaucoma Association’s Consensus Series – 9 on Childhood Glaucoma. In 2014, the Childhood Glaucoma Research Network became a member of the World Glaucoma Association. In 2018, members once again collaborated for the publication of the Surgical Management of Childhood Glaucoma.
As an uncommon disease, there is a significant research challenge with pediatric glaucoma because individual eye centers across the world do not have enough patients to accomplish critical studies. In 2016, the CGRN was able to complete the first ever worldwide survey of pediatric glaucoma to advance our understanding of all types of glaucoma called the International Study of Childhood Glaucoma (ISOCG). Following the completion of ISOCG, the CGRN continued on to join The Robison D. Harley, MD CGRN International Pediatric Glaucoma Registry. The Registry, hosted by Wills Eye Hospital and maintained by Invitae, allows clinicians to collaborate and conduct large-scale investigations.
Allen D. Beck, MD
Emory Eye Center
Atlanta, Georgia, USA
Chair and Director, Emory Eye Center
William and Clara Redmond Professor of Ophthalmology Section of Glaucoma
Alana L. Grajewski, MD
Bascom Palmer Eye Institute
Miami, Florida, USA
Director of The Samuel & Ethel Balkan International Pediatric Glaucoma Center
Professor of Clinical Ophthalmology
James D. Brandt, MD
UC Davis Health
Sacramento, California, USA
Vice-Chair for International Programs & New Technology, Director of the Glaucoma Service, Professor of Ophthalmology & Vision Science
Sir Peng T. Khaw, PhD FRCS
Moorfields Eye Hospital
London, United Kingdom
Professor of Glaucoma and Ocular Healing at the UCL Institute of Ophthalmology, Consultant Ophthalmic Surgeon at Moorfields Eye Hospital
Sharon F. Freedman, MD
Duke Eye Center
Durham, North Carolina, USA
Maria Papadopoulos MB BS, FRACO
Moorfields Eye Hospital
London, United Kingdom
Consultant Ophthalmic Surgeon, Glaucoma and Pediatric Glaucoma Specialist